They have stopped his around-the-clock adovan and are only giving it to periodically to decrease the chances of withdrawl symptoms.
My handsome boy gave me a big smile yesterday.. the first since his surgery. When I looked into those big brown eyes and saw that big toothless smile I just knew.. everything is going to be okay.
We are now in the ICE room in the peds cardiology unit.. one step closer to home. I am so proud of all the hurdles my boy has overcome. He is my hero!